Mitchell's Progress

Mitchell is 11 months old today. He is still very behind and progress is slow. But we notice every tiny improvement he makes and celebrate it! It's hard to say which issue is his biggest. He has struggled with CVI (cortical vision impairment) which means his eyes are set up to see fine, but the pathways from the eyes to the brain are not completely working. He also has acid reflux and torticollis. He has mixed tone. In some areas of his body he has high tone which means he's unusually stiff, while in others he is hypotonic or low tone. His low tone in his trunk contributes to him not yet independently sitting.

Mitchell had his 2nd MRI done about a month ago. It was found he has a thin corpus callosum. His white matter is immature, which is typical when a child has delays like his. There wasn't anything else to explain his eyesight issues on the MRI, but he did have a visual test under sedation last week to determine the abilities of the pathways. We are waiting for results.

Mitchell starts the week with 6 appointments including physical therapy, occupational therapy. visits to a chiropractor and early intervention from the state. In addition, we have multiple doctors to see on a regular basis. We are so appreciative of the caregivers we interact with and have faith Mitchell's future will bring continued improvement. More to follow on Mitchell...

Welcome to our Blog

I've been thinking for some time how I should get around to creating a blog about our family's happenings, especially because so many of our family and friends are interested in how things are going with our children. Particularly our little Mitchell who has been through a lot health-wise in his 11 month lifetime. Managing his therapies is like having a second job so between work, caring for our other son, Luke, there doesn't seem like we'd have much else to write about. But, we'll see. In any regard, welcome. Glad you're here.