Wednesday, March 26, 2008

Mitchell Update

Mitchell had a swallow study done today. It was found that he "aspirates" or gets some liquid in his lungs when he swallows formula/liquid. This is a result of his low tone and his not yet sitting unassisted. Typically when kids aspirate, there are chronic respiratory issues. However, Mitchell is generally well and rarely has the sniffles or congestion. He doesn't have a problem eating pureed food.

What now? Understandably we're nervous about giving him any formula, but because he's been so healthy, the team suggested we continue as-is because Mitchell needs the hydration. The test results are being shared with some of his doctors and we'll go from there. We already have a motor feeding session scheduled for Monday which will help give us some more direction as well. Worst case scenario is that he'll need a feeding tube in order to avoid long term lung damage or other issues. Yikes! Please keep him in your prayers and we'll post any new findings.

Otherwise, sleeping is still going well even though Mitchell is tending to get up very, very early. We've noticed improved head and neck control and his sight seems to be better too. He's been fitted for orthotics which should help with his feet positioning and weight bearing.

We are so thankful for everyone in our little Mitchell's eventful 1 year-long life, particularly his therapists he sees weekly or more and who really want the best for him, including Kirsten (his nanny who regularly works him out), Michelle (OT), Ashley (PT), Chris (EI), Anna (vision), Dr. Paul, Jeff, John, Gayle, Barry and the rest of the Baker Wellness gang.

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